We are deeply grateful to the individuals, organizations, and supporters who have contributed their time, talent, and resources to the mission of SMA-PME Research.
Recent Recognition
We thank Ms. Lisa Eliot with Pampered Chef, LLC for her generous donation of valuable time, energy, and funds to support our charity during an August 2025 FUNdraiser.
Global Research Partnership
Heartfelt thanks to the international research scientists and leaders from French charity ASAP for Children who participated in our June 26, 2023 global forum on acid ceramidase deficiency.
Birthday Benefit
We extend our gratitude to Mark Schratz of Chandler, Arizona, who requested donations to SMA-PME Research instead of birthday gifts in January 2023.
Benefit Concert Contributors
Special thanks to the following organizations for their support of our March 27, 2022 Benefit Concert:
- Trinity United Methodist Church
- Coastal Carolina University Department of Music
- Grand Strand American Guild of Organists
- Allspice Studios (Myrtle Beach, SC) for graphic design services
Continuous Support
We are grateful to Dr. Jeffrey Medin from Medical College of Wisconsin for his consultation and website review assistance.
We extend deep appreciation to all parents of children with SMA-PME and Farber disease who have shared their children's stories on our website.
We thank our anonymous donors who helped Adeline's family purchase essential mobility equipment, including a transport chair and electric wheelchair.