At age 2½, Megan began experiencing regular falls without apparent cause and had difficulty standing back up. Multiple hospitalizations and tests followed before her SMA-PME diagnosis at age 3. Around this time, she developed epilepsy and lost her ability to walk independently, requiring a walker. Frequent choking episodes led to a feeding tube operation.
At age 4, severe epilepsy emerged, prompting doctors to trial numerous medications in search of control. At age 5, her condition stabilized — though recurring pneumonia hospitalizations remained a constant threat. Her family made the significant decision to transition to home-based palliative care, with doctors and nurses providing in-home support.
Today at age 6, Megan's disease remains stable with medication-controlled epilepsy. She experiences occasional viral infections but is managing — a testament to her courage, her family's devotion, and the care surrounding her every day.
